Ok, so I've currently got a call in to the Pulmonologist. Waiting for a second call back.
I noticed last night when Lily was laying down to have her diaper changed that the area around her mouth was blue. She had been fine sitting up. I've noticed blue appearing more and more lately.
Some of the people I know have tried to tell me that blue is going to happen when people have the problem that Lily has. I'm not convinced. Turning blue is never normal, and Lily is turning blue more and more recently. Now, there's some question in my mind as to if I'm just *noticing* it more, but I don't necessarily think that's the case.
Anyways, so the pulmonologist's nurse just called me back, and asked if Lily has a SAT monitor. Said that would be handy to have. So, I can see us getting one soon. Thank goodness for Medicaid. Anyways, the nurse said that he would probably want to see her, and we would see what we needed to do.
Sort of having flashbacks of the pulmonologist talking about having to go in and move the blood vessels off of Lily's bronchus. Blegh.
However, I think I will take a 'simple' problem like her bronchus being collapsed if it means her PH is not getting better. Its sort of the best of the worst scenario thing.
ARGH! Frick-a-frack-a-som-a-beech!
Anyways, the waiting game resumes again. I want the doctor to call me back like NOW. You know?
I'll edit this particular blog post as I find out more.
