I didn't realize it had been so long since I had updated this...
Lily is doing great. She really is. For the first time since birth, she's on the growth chart. 43rd percentile, to be specific, for weight. 15th percentile for height. 85th percentile for head size. So, basically, she's short and has a huge head,but her weight is okay!
We're transitioning her from pediasure to regular whole-milk.
She is talking so much now. Her favorite phrase of the moment is "Come back here!" She hates it when you get more than a few feet away from her. She's also fond of saying "Wow, that was close!" She's obsessed with the camera now - I guess all my picture taking has rubbed off. Just recently she put a hat on her head and demanded that I 'take a pit-chur'. So I did, and she happily cheesed at me.
She goes in for surgery on Tuesday. Its just to repair her belly button. Nothing major =) Just finally fixing the droopy belly button. To be honest, I"ll kind of miss it. Her belly button has character. It looks like a smile. However, its because of herniation, so it definitely needs to be fixed.
We are so lucky that Lily is doing well. So many other PH kids are not.
Angel - 3 years old - On day 13 of recovery after having open heart surgery. She's not doing well. If there isn't some major improvement soon, her parents might have to make a very hard decision.
Riley - 4 years old - is now going to be placed on the transplant list.
Please keep these two in your prayers.
